Kennedy Disease Follow-up

Updated: Sep 29, 2019
  • Author: David A Shirilla, DO; Chief Editor: Nicholas Lorenzo, MD, CPE, MHCM, FAAPL  more...
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A risk for falls is best addressed by assessments by a physical therapist.

If questions or concerns arise regarding the patient's job performance, an evaluation of his or her functional or physical capacity may be appropriate. A physical therapist or staff at a rehabilitation center typically performs this evaluation. Patients are understandably reluctant to surrender their functional independence. However, they must not be a danger to themselves or others while working or performing their activities of daily living.

If the patient's ability to operate a motor vehicle is a concern, this concern should be noted in the chart, and the patient should be advised to seek further evaluation by means of formal assessment at a rehabilitation center or the local Department of Motor Vehicles or its equivalent.



As stated, the life expectancy is not reported to be reduced in Kennedy disease if care has been taken to prevent complications (eg, aspiration, falls).


Patient Education

See the list below:

  • The treating physician must have an ongoing dialogue with the patient to keep him or her informed about the status of the disease.

  • Although patient issues should be addressed as needed, the physician must be proactive and anticipate issues such as potential difficulties with driving and other activities of daily living.

  • The treating physician should maintain a balance between the reality of the patient's disease process and a sense of hope and the patient's ability to cope with the disease.

  • National Organization for Rare Disorders: This association addresses some uncommon or orphan neurologic disorders for which no dedicated organization exists.