Pediatric Craniosynostosis Follow-up

Updated: Dec 04, 2018
  • Author: Raj D Sheth, MD; Chief Editor: George I Jallo, MD  more...
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Follow-up

Further Outpatient Care

Following surgery, carefully monitor patients to ensure that the suture does not re-fuse. Continue head circumference measurements. Watch for signs of raised intracranial pressure in infants at risk.

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Complications

In the immediate postoperative period, complications include hemorrhage.

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Prognosis

Patients with primary craniosynostosis must be monitored after surgery. The vast majority of patients with primary, single suture synostosis have little or no morbidity following surgery. One systematic review of neurodevelopmental studies found some evidence that children with single suture synostosis are at increased risk for difficulties in cognitive, language, and motor domains during infancy (both pre- and post-surgery) and childhood. [17]

In secondary craniosynostosis, prognosis is dependent upon underlying etiology.

Patients with syndromic craniosynostosis can have a much more complicated clinical course due to the increased severity of the craniosynostosis and associated problems (e.g., hydrocephalus and airway obstruction). They are also at increased risk of intellectual disability, and social and attention problems. [18] A multidisciplinary approach is important in the management of the complex problems of these patients.

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Patient Education

If a patient has a mild head shape deformity, inform parents that the deformity will become less prominent with the appearance of abundant hair and physiological molding.

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