Hemoglobinopathy Retinopathy Follow-up

Updated: Aug 22, 2016
  • Author: Brian A Phillpotts, MD, MD; Chief Editor: Hampton Roy, Sr, MD  more...
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Follow-up

Further Outpatient Care

Monitor medication dose and adverse effects.

Enroll patient in local sickle cell clinic.

Ophthalmologic follow-up care is determined by the proliferative stage.

Stages I and II: Follow-up care is performed every 6-12 months.

Stages III and IV: Follow-up care is usually within 1 week after laser surgery to rule out retinal detachment. After the first follow-up visit, monthly follow-up visits are advocated to confirm and monitor the regression of the neovascularization. Insufficient treatment requires further laser treatments at the time of follow-up care.

Stage V: Follow-up care is based on retinal specialist consultation.

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Further Inpatient Care

Inpatient care often is not needed, except for noncompliant patients in sickle cell crisis or for patients with a hyphema who are unable to comply with follow-up visits.

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Complications

Potential complications include the following:

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Prognosis

The prognosis is fair to good if consistent follow-up care is maintained with both an internist/hematologist and an ophthalmologist.

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Patient Education

Patients with sickle cell disease should be well informed of their current and potential long-term complications.

Encourage patients to enroll at a local or regional sickle cell clinic.

Provide patients with information regarding a local support group.

Encourage parents to seek genetic counseling prior to starting a family.

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