Endomyocardial Fibrosis Follow-up

Updated: Nov 24, 2014
  • Author: Ali A Sovari, MD, FACP, FACC; Chief Editor: Henry H Ooi, MD, MRCPI  more...
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Follow-up

Transfer

Transfer suitable patients with severe symptoms for consideration of endomyocardial resection. Although the operative mortality rate is high (approximately 20%), prognosis is favorably altered in those that survive the surgery.

Consider heart transplant in patients who are classified in function class III or IV.

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Deterrence/Prevention

No specific preventive measures have been proven effective.

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Complications

Common postoperative complications include low cardiac output, heart block, and ventricular arrhythmias.

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Prognosis

Prognosis for this condition is poor. Incidence of sudden cardiac death from fatal arrhythmias or from progressive cardiac failure is high.

Most patients have extensive disease at the time of presentation; therefore, survival after diagnosis is relatively brief. In one study, 95% of a group of patients had died at 2 years. In a second study, 44% of patients died within 1 year after the onset of symptoms, and another 40% of patients died 1-3 years after onset.

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Patient Education

Inform patients about the poor prognosis and increased likelihood of fatal and nonfatal arrhythmias.

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