Hereditary Coproporphyria Follow-up

Updated: Dec 27, 2017
  • Author: Thomas G DeLoughery, MD; Chief Editor: Emmanuel C Besa, MD  more...
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Follow-up

Further Outpatient Care

Patients with recurrent attacks may benefit from a program of chronic hematin infusion. For example, women with severe symptoms at the time of their menses can have 1 dose of 4 mg/kg before the onset of their period.

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Deterrence/Prevention

Avoid medicines that can provoke an attack. The list of medications to avoid is long (see Causes); however, only a few have been implicated clearly in porphyria. Patients also should avoid overconsumption of alcohol and avoid fasting.

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Prognosis

See the list below:

  • Most patients (60-80%) who have an acute attack of porphyria never have another. Avoiding precipitating factors also helps prevent attacks. Researchers consider coproporphyria a less severe disease than AIP.

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Patient Education

See the list below:

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