Achondrogenesis Follow-up

Updated: Jan 25, 2019
  • Author: Santina A Zanelli, MD; Chief Editor: Maria Descartes, MD  more...
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Follow-up

Prognosis

See the list below:

  • Achondrogenesis is universally lethal.

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Patient Education

Current information about the syndrome should be made available to the families.

Families may be referred to the following groups for helpful information and support:

Little People of America (LPA), Inc

PO Box 745

Lubbock, TX 79408

Phone: 1-888-LPA-2001

email: LPADataBase@juno.com

Parents of Dwarfed Children

11524 Colt Terrace

Silver Spring, MD 20902

Phone: 301-649-3275

International Skeletal Dysplasia Registry

Cedars-Sinai Medical Center

444 S San Vicente Boulevard

Suite 1001

Los Angeles, CA 90048

Phone: 310-855-7488

email: mpriore@mailgate.csmc.edu

International Center for Skeletal Dysplasia

St. Joseph Hospital

7620 York Road

Towson, MD 21204

Phone: 410-337-1250

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