Achondrogenesis Follow-up

Updated: Jan 25, 2019
  • Author: Santina A Zanelli, MD; Chief Editor: Maria Descartes, MD  more...
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See the list below:

  • Achondrogenesis is universally lethal.


Patient Education

Current information about the syndrome should be made available to the families.

Families may be referred to the following groups for helpful information and support:

Little People of America (LPA), Inc

PO Box 745

Lubbock, TX 79408

Phone: 1-888-LPA-2001


Parents of Dwarfed Children

11524 Colt Terrace

Silver Spring, MD 20902

Phone: 301-649-3275

International Skeletal Dysplasia Registry

Cedars-Sinai Medical Center

444 S San Vicente Boulevard

Suite 1001

Los Angeles, CA 90048

Phone: 310-855-7488


International Center for Skeletal Dysplasia

St. Joseph Hospital

7620 York Road

Towson, MD 21204

Phone: 410-337-1250