Medullary Cystic Disease Follow-up

Updated: Nov 16, 2015
  • Author: Prasad Devarajan, MD, FAAP; Chief Editor: Craig B Langman, MD  more...
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Follow-up

Transfer

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  • Transfer to a pediatric dialysis unit is required when the child with nephronophthisis (NPH)–medullary cystic kidney disease (MCKD) develops end-stage renal disease (ESRD).

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Complications

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  • Complications are those of progressive renal failure.

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Prognosis

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  • ESRD develops in all patients.

  • The disease does not recur in transplanted kidneys.

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Patient Education

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  • As ESRD develops, appropriate nutritional and medical education should be made available.

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